Tag Archives: glioblastoma

Life Is So Unpredictable

2 Feb

When my youngest brother was in hospice care dying of brain cancer, I wanted to do something for him, but there was little to be done. He had stopped speaking and just looked at us with soft eyes. My brother was a character. He was a hair stylist and a massage therapist. He used to volunteer at a prison, going in with only clippers to sculpt Afros. He loved it.

Such a cutie. Youngest of five.

What about a massage? I found the yellow pages (remember them?) and looked for a candidate. I scrolled through the list, getting either no answer or no dice. But then…

He was just beginning to have symptoms when this picture was taken.

I found a guy who was willing to come out. He was a rotund gay boy who had worked on many dying men during the AIDS crisis. He was wonderful. I saw my brother’s face relax. He loved it.

My mother’s wedding.

When our angel was done he asked if we’d like to do Reiki on Michael. Reiki is a hands on healing/energy work. I was familiar but had never tried it. He cradled my brother’s head. I stood holding his feet. My daughter was on one side and my sister-in-law on the other. I closed my eyes, not knowing what to expect.

After his first surgery.

The room was quiet. My hands began to tingle. The only way to describe it was an electrical current entering one hand, traveling my body and out the other. We were a healing circle and I was incredibly moved. As we exited the room, our angel glowed. I don’t know how else to describe it. As I hugged him expressing my gratitude, the TV across the hall was playing “Amazing Grace”. It was as close to a miracle as I’ve ever experienced.

Michael (left) healing from first brain surgery. Me, oldest brother.

I have since become both a massage therapist and a Reiki practitioner. Loosing my youngest brother changed me. I can’t believe it will be the twenty fifth anniversary of his death this year. I miss him every day.

DOS TORTAS

In Memoriam

4 Feb

We got a message this week that  knew was coming, just not when. My niece died after a long battle with brain cancer. We were making plans to go see her when we got the message from my brother, “she’s gone”. She had contracted Covid but seemed better. Then when no one was looking she slipped away quietly. She was 46.

2016 There are no words.

I remember when she was born. My brother and sister-in- law had a son. I had a daughter and then they had Raegan. All three cousins were less than a year apart, each from the next. Raegan Mercedes was such a cool name.

1977 the day before Raegan was born. Her very pregnant mom on the left, assorted brothers, and my mother in the center. I am on the right. We were all so young.

To say she was smart was an understatement. A Doctorate in Human Factors Psychology.

The discipline of human factors is devoted to understanding how people interact with their environments and the products and objects in those environments.

Raegan had worked on systems to effectively integrate technology for the US military. She was our whiz kid and fascinating to talk to. Even as her vision deteriorated from the pressure of the tumor, she worked with the local county agency to give feedback on how to help people with visual disabilities navigate their transportation system. Our hearts break with the loss of her.

The last time Lisa and I got to hang out with Raegan was Thanksgiving 2022. We were in Florida with my brother, her dad and other family members. One afternoon we walked the few blocks to the highway where there was a large sex store.

Sadly they closed the end of 2023.

Only Raegan with her lesbian aunts would walk the store aisles laughing uncontrollably at enormous wobbly dildos, penis lollipops, edible underwear and a huge variety of vibrators. I smile at the memory (not of the dildos).

With Captain Jack
Animals helped her so much.

There is so much more I could say, but it all makes me sad. Hug each other, be kind to strangers, take care of yourself, laugh and hug puppies. Especially puppies, and goats, and pigs, for Raegan.

DOS TORTAS

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